Fourteen year old girls should be thinking about boys, clothes, music and what they are planning to do the next weekend. They should not be thinking about Chronic Recurrent Multifocal Osteomyelitis (CRMO) like Alyea is.
Alyea Fundraiser
Alyea has been fighting this rare incurable disease since she was twelve years old and she is hoping to start a new infusion medication to relieve some of the symptoms. People can help her on this journey.
One might expect, the medical costs have been high and the family is inviting supports to join them at a bowling fundraiser on Sunday, April 28, from 4:00 p.m. to 7:00 p.m. at Classic Lanes (2145 Avon Industrial Drive in Rochester Hills). Three hours of bowling, pizza, and pop along with door prizes, bake sale and raffles. Non-bowlers are welcome, too. For tickets, contact Gina Z at [email protected].
Alyea has been fighting this rare incurable disease since she was twelve years old and she is hoping to start a new infusion medication to relieve some of the symptoms.
CRMO is so rare that most doctors are not familiar with it and is a rare (one in every 500,000 people) genetic disorder with no known cure. CRMO is an invisible illness that results in lesions, nerve pain and soft tissue complications that make life extremely challenging for any adolescent.
